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#Rarebonemobility

Dear participant,

We invite you to take part in a research study that will focus on movement patterns. If you accept to participate, we will ask you to fill in a questionnaire (online or in an interview, which one you prefer) and to walk for a specific time carrying your mobile phone and using a specific app for movement analysis and record your movement data while walking.

 

The researchers

Carinthia University - Austria

Sascha Fink

Email: s.fink@fh-kaernten.at

Mobile: +43 (0)5 / 90500-3268

 

Évora University – Portugal

Inês Alves

Email: ines.alves@uevora.pt

Mobile: +351 910 442 840

 

#Movementpatterns

The overall goal of this joint research project is to understand individual mobility and movements patterns among adults with a rare bone condition. The results may significantly contribute to rehabilitation in-home care for example and to support physical activity prescription.

 

Parts of the study

1. Questionnaire

The questionnaire will collect essential data related to physical activity and exercise habits and on perceived daily mobility.

2. Mobile phone app

Phyphox® is a free app for movement analysis and is available for Android and IOS phones. It has a high level of data security and can collect movement data. You will be asked to download the app into your phone and you will receive instructions on how to use it.

Participation

The questionnaire will be conducted online using Lime Survey platform or by an interview by one of the researchers, accordingly your preference. It will take approximately 10 minutes to respond.

For the movement analysis using Phyphox® app, you will be asked to activate the app and walk for 15 minutes with your own mobile phone in your LEFT pocket.

After you finish, you can save the data in the app and then send it to the researchers.

A total of 50 people is expected to participate in this study. Your participation is voluntary, and there is no cost to you. You will not receive any financial compensation for your participation.

 

If you have questions or doubts

If you have any further questions regarding this project, please do not hesitate to contact Sascha Fink or Inês Alves. Questions concerning your rights as a patient and participant in this questionnaire will also be answered. As soon as the general results of this questionnaire are available, you can also be informed about them if you wish, reaching out to the researchers (contacts in page 1).

 

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